The International Neuromodulation Society wishes to inform the community about relevant endeavors, including:
European Brain Council's Age of the Brain
As part of its public education campaign, the International Neuromodulation Society (INS) joined more than 200 organizations to support the European Brain Council's (EBC) proposal to recognize 2014 as The European Year of the Brain (EYOB).
European Year of the Brain aimed to "celebrate the wonder of the brain and create initiatives which will change behaviours and lead to measurable improvements in health," and has the potential to do the following:
- Increase the profile of all brain diseases in every member state
- Draw attention to the costs and impact of brain diseases now and into the future
- Increase funding for brain research through the framework programmes and in the member
- Increase efforts to educate, inform and advise all those living with brain diseases in order to
improve their quality of life
- Recognise the increasingly important role of those who care for a person living with a brain
- Promote normal brain function and development and address barriers to these.
- Draw attention to health inequalities in brain diseases
- Develop action plans at local, national, regional and European level to address specific areas
related to brain diseases
- Influence policy decisions over the next 5-10 years
- Address controversial and difficult areas
- Stimulate open debate and dialogue on brain diseases
- Show the value of partnership across all of society
We encourage you to view the materials developed in support of this initiative, which are posted on the EBC website at: http://www.europeanbraincouncil.org/year-of-the-brain/.
WIKISTIM is being developed by the nonprofit Neuromodulation Foundation, Inc. (an independent organization from the INS), as a resource for the global neuromodulation community. The online wiki allows contributors to list and extract primary research data to enable tabular downloads and provides the capability of a forum discussion for knowledge-sharing. Overall, it is intended to extend the utility of published clinical research.
Adoption of this knowledge base should yield:
- Improved patient care
- Support for reimbursement efforts
- Facilitated regulatory submissions
- Improved quality of published reports
- Inspiration for research and innovation
- Increased communication
The abstracted data are categorized in data sheets to enable meta-analysis by users. The site has a customized search engine and links to PUBMED abstracts as well as to spinal cord stimulation practice parameters that were developed in 2007 by more than 20 experts and are accessible on the website of the Neuromodulation Foundation, www.neuromodfound.org. WIKISTIM also provides a forum for ongoing discussions of any length.
Launched in 2013, WIKISTIM (www.wikistim.org) welcomes submissions of data from published papers about neuromodulation and participation in shaping the resource through input and suggestions, as well as help extracting its hundreds of research papers that document the development of neuromodulation therapy. The Neuromodulation Foundation also accepts charitable donations to continue this work.
Pain Alliance Europe - Member of the European Parliament Interest Group on Brain, Mind and Pain
A Register of Support opened Jan. 13 - 14, 2015 at a meeting of the European Parliament in Strasbourg, and more than 40 Members of the European Parliament signed. According to the registered charity Pain Alliance Europe, the Interest Group on Brain, Mind and Pain "aims to encourage research into and access to innovative treatments, promote prevention and self-management approaches, decrease stigma and work together to improve quality of life for people living with these disabling conditions."
Supporters are calling for policymakers to:
- Support patient-led campaigns to educate, eradicate stigma and raise awareness of neurological and chronic pain disorders
- Improve regulation to better enable research to develop innovative options in the prevention and treatment of these disorders
- Strengthen patient involvement in this research, and in policy-setting and decision-making
- Implement relevant European social legislation to ensure appropriate support for people living with neurological and chronic pain disorders
Pain Alliance Europe launched and is coordinating the Interest Group in conjunction with the European Federation of Neurological Associations.